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4 years ago, I experienced swelling of the eyes, face, tongue and extremities accompanied urticaria, nearly daily for almost 5 months. Sometimes I would experience the swelling and hives together, or separately independent. There were no known allergies to food or other things that induced the episodes. There were no outside factors either. I was hospitalized once where I was treated with 2 epipens with no improvement. Other antihistamines also never worked, topical or orally. Upon seeing an allergist, he ran a full allergy panel and was unable to find the cause of my episodes. I had no family history and experienced severe bronchospasm that kept me from sleeping. My C1 levels were normal. He diagnosed me with Idiopathic Non-histaminergic Acquired Angioedema. Recently, I started noticing strange symptoms. I was itchy, with hives, my ears get hot and red, headaches, stringy/sticky blood, urinary retention, weight gain, and pain in the inguinal lymph nodes and axillary lymph nodes. I researched a little and found there is a link with AAE and lymphoproliferative disorders and felt it was necessary to pursue medical advice.


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