Sir, madam, my daughter baby age 11 months. Normal delivery. By born 3 liquid just like water bubbles on body legs and hands. After that skin top layers disturbed. This complaint name is epidermal bullosa. Present used only liquid paraffin oil. And regen d 60 gel only. Complaints not cured. Repeated the bubbles comes. So pls any medicine and diagnosis. Thank you.
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Looks like epidermolysis bullosa as you explained. It's a genetic disease which can be life long. You need to be under regular follow ups with your pediatrician or dermatologist. Meet any deematologist if you have not met before for any advances in treatment.
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In epidermolysis bullosa best approch is to prevent trauma to child, give adequate nutrition and prention of infection by treating ruptured bullae area. There is no permanent cure as I know. Once you should consult skin specialist for recent advances in this ailment.
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This is a genetic skin disease of variable severity. Genetic testing will be required to know which type of epidermolysis bullosa your child has. Unfortunately, no absolute cure has been found yet. The management is usually supportive. Usually local dressing, pain control, prevention of super added infection etc. Paraffin dressing is fine. For other medications, the dosage will depend on the weight of the baby.
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Theres no specific treatment for epidermolysis bullosa. Do continue the same treatment.
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Epidermolysis bulla is a genetic condition in which bullae are formed at any site of mechanical trauma. It has various subtypes but mainly 4 and severity from mild to severe depending on the subtype. To know the exact subtype genetic testing is advised. And you should be in contact with a dermatologist regularly. However from what you have written the basic advice tht can be given is to do two things 1) good protein intake. Adequate nutrition to prevent infection at site of bullae 2) prevent trauma. For which soft padding can be used there is no cure for this condition but it can be controlled to good extent.
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No need to worry. Continue same treatment which is going on.
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