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Hello doctor. I'm a 25 year old male. I'm on steroids for the last 4 years for the treatment of nephrotic syndrome. My haemoglobin level is raising and falling now a days. Levels are 18.8, 16.5,17.4,15.5, and now 16.8. Hematologist says that it is polycythemia. He advised phlebotomy. Hct levels are almost normal to slightly high. Rbc and wbc are also normal to slightly high. Now I'm taking wysolone 60 mg daily, cilacar 5 mg, daonil, Shel D, and aspirin 75 mg. My hb levels are not steadily rising. Sometimes it rises and otherwise it falls. Can you please explain about my condition. My real biopsy shown minimal change.
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Steroids for such a long duration carries side effects. There are many other side effects which should be worried upon. Polycythemia may require phlebotomy as advised. May consider for alternative drugs to spare steroids. It requires thorough evaluation of your records.
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