Hi, I am suffering from left pvl since birth at that time doctors advice for physio n we did and they said its enough for dat time as I will grow I will be changed but no change occur and now at the age of 16 I again contact doctors n again physio for 3 months n they said do exercise at home. But am unable to do basic activities like putting gears on bike swimming running putting gears lifting weights doings pull ups push ups etc is there any hope please reply.
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Currently, there are no treatments prescribed for PVL in Allopathy. All treatments administered are in response to secondary pathologies that develop as a consequence of the PVL. Because white matter injury in the periventricular region can result in a variety of deficits, neurologists must closely monitor infants diagnosed with PVL in order to determine the severity and extent of their conditions. Patients are typically treated with an individualized treatment. It is crucial for doctors to observe and maintain organ function: visceral organ failure can potentially occur in untreated patients. Additionally, motor deficits and increased muscle tone are often treated with individualized physical and occupational therapy treatments. You may try out alternative therapies in addition to Occupational therapy and physiotherapy.
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